Detalles del recurso
Pertenece a:
University of Twente Publications
Descripción: Objective:
To obtain more insight into the process of potential implementation of a screening program, which aims to identify carriers of cystic fibrosis and haemoglobinopathies before pregnancy, in order to enable couples at high risk of having a child with these disorders, to make informed reproductive decisions. -
Methods:
Use of sociotechnical analysis, based on a model of co-evolution between technology and society, and, for comparison, the study of the implementation processes of two already existing health care programs with similar aspects to the screening program at issue. -
Results:
Factors important for success appeared to be the existence of sociotechnical niches, in which technological options can be developed and studied in an experimental setting; a structural approach of providing information to future parents; a party that can articulate demand; governmental involvement in the attunement between various stakeholders; and a screening infrastructure in which large-scale DNA diagnostic services are available. -
Conclusions:
Successful implementation of preconceptional carrier screening for cystic fibrosis and haemoglobinopathies will depend on changes at both regime and landscape level, including the establishment of a new preconceptional health care setting and a clearly visible public health authority which can coordinate, monitor and evaluate such an initiative in public health care.
Autor(es): Achterbergh, Roos - Lakeman, Phillis - Stemerding, Dirk - Moors, Ellen H.M. - Cornel, Martina C. -
Id.: 54805128
Versión: 1.0
Estado: Final
Tipo: application/pdf -
Tipo de recurso:
Article / Letter to editor
-
Tipo de Interactividad: Expositivo
Nivel de Interactividad: muy bajo
Audiencia:
Estudiante
- Profesor
- Autor
-
Estructura: Atomic
Coste: no
Copyright: sí
: © 2007 Elsevier
Formatos: application/pdf -
Requerimientos técnicos: Browser: Any -
Relación:
[References] http://doc.utwente.nl/78619/1/Achterbergh07implementation.pdf
Fecha de contribución: 07-dic-2011
Contacto:
Localización:
