Tuesday, May 26, 2015

 

 



Soy un nuevo usuario

Olvidé mi contraseña

Entrada usuarios

Lógica Matemáticas Astronomía y Astrofísica Física Química Ciencias de la Vida
Ciencias de la Tierra y Espacio Ciencias Agrarias Ciencias Médicas Ciencias Tecnológicas Antropología Demografía
Ciencias Económicas Geografía Historia Ciencias Jurídicas y Derecho Lingüística Pedagogía
Ciencia Política Psicología Artes y Letras Sociología Ética Filosofía


Implementation of preconceptional carrier screening for cystic fibrosis and haemoglobinopathies: a sociotechnical analysis

1) La descarga del recurso depende de la página de origen
2) Para poder descargar el recurso, es necesario ser usuario
    registrado en Universia


  Descargar recurso

Detalles del recurso

Pertenece a: University of Twente Publications  

Descripción: Objective: To obtain more insight into the process of potential implementation of a screening program, which aims to identify carriers of cystic fibrosis and haemoglobinopathies before pregnancy, in order to enable couples at high risk of having a child with these disorders, to make informed reproductive decisions. - Methods: Use of sociotechnical analysis, based on a model of co-evolution between technology and society, and, for comparison, the study of the implementation processes of two already existing health care programs with similar aspects to the screening program at issue. - Results: Factors important for success appeared to be the existence of sociotechnical niches, in which technological options can be developed and studied in an experimental setting; a structural approach of providing information to future parents; a party that can articulate demand; governmental involvement in the attunement between various stakeholders; and a screening infrastructure in which large-scale DNA diagnostic services are available. - Conclusions: Successful implementation of preconceptional carrier screening for cystic fibrosis and haemoglobinopathies will depend on changes at both regime and landscape level, including the establishment of a new preconceptional health care setting and a clearly visible public health authority which can coordinate, monitor and evaluate such an initiative in public health care.

Autor(es): Achterbergh, Roos -  Lakeman, Phillis -  Stemerding, Dirk -  Moors, Ellen H.M. -  Cornel, Martina C. - 

Id.: 54805128

Versión: 1.0

Estado: Final

Tipo:  application/pdf - 

Tipo de recurso: Article / Letter to editor  - 

Tipo de Interactividad: Expositivo

Nivel de Interactividad: muy bajo

Audiencia: Estudiante  -  Profesor  -  Autor  - 

Estructura: Atomic

Coste: no

Copyright: sí

: © 2007 Elsevier

Formatos:  application/pdf - 

Requerimientos técnicos:  Browser: Any - 

Relación: [References] http://doc.utwente.nl/78619/1/Achterbergh07implementation.pdf

Fecha de contribución: 07-dic-2011

Contacto:

Localización:


Otros recursos del mismo autor(es)

  1. Thrombocytopenia in a nutshell
  2. Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next-Generation Sequencing and Informed Consent in Diagnostics High-throughput nucleotide sequencing (often referred to as next-generation sequencing; NGS) is incr...
  3. Comment on Gialluisi et al
  4. Trends in genetic patent applications: the commercialization of academic intellectual property We studied trends in genetic patent applications in order to identify the trends in the commercializ...
  5. Developing a framework for implementation of genetic services: learning from examples of testing for monogenic forms of common diseases Genetics in health care is shifting, and responsibilities of genetic and nongenetic specialists are ...

Otros recursos de la misma colección

  1. Exploring the success of an integrated primary care partnership: a longitudinal study of collaboration processes Background Forming partnerships is a prominent strategy used to promote integrated service delivery ...
  2. Strong and Weak Rarity Value: Resource Games with Complex Price–Scarcity Relationships We analyze effects of rarity value on the sustainability of a natural resource. Rarity value means t...
  3. An interactive portal to empower cancer survivors: a qualitative study on user expectations Purpose Portals are increasingly used to improve patient empowerment, but are still uncommon in onco...
  4. Free-surface grease flow on a rotating plate Grease lubrication is traditionally used in a great variety of mechanical systems such as rolling be...
  5. Lubricating grease shear flow and boundary layers in a concentric cylinder configuration Grease is extensively used to lubricate various machine elements such as rolling bearings, seals, an...

Valoración de los usuarios

No hay ninguna valoración para este recurso.Sea el primero en valorar este recurso.
 

Busque un recurso