Tuesday, November 25, 2014

 

 



Soy un nuevo usuario

Olvidé mi contraseña

Entrada usuarios

Lógica Matemáticas Astronomía y Astrofísica Física Química Ciencias de la Vida
Ciencias de la Tierra y Espacio Ciencias Agrarias Ciencias Médicas Ciencias Tecnológicas Antropología Demografía
Ciencias Económicas Geografía Historia Ciencias Jurídicas y Derecho Lingüística Pedagogía
Ciencia Política Psicología Artes y Letras Sociología Ética Filosofía


Implementation of preconceptional carrier screening for cystic fibrosis and haemoglobinopathies: a sociotechnical analysis

1) La descarga del recurso depende de la página de origen
2) Para poder descargar el recurso, es necesario ser usuario
    registrado en Universia


  Descargar recurso

Detalles del recurso

Pertenece a: University of Twente Publications  

Descripción: Objective: To obtain more insight into the process of potential implementation of a screening program, which aims to identify carriers of cystic fibrosis and haemoglobinopathies before pregnancy, in order to enable couples at high risk of having a child with these disorders, to make informed reproductive decisions. - Methods: Use of sociotechnical analysis, based on a model of co-evolution between technology and society, and, for comparison, the study of the implementation processes of two already existing health care programs with similar aspects to the screening program at issue. - Results: Factors important for success appeared to be the existence of sociotechnical niches, in which technological options can be developed and studied in an experimental setting; a structural approach of providing information to future parents; a party that can articulate demand; governmental involvement in the attunement between various stakeholders; and a screening infrastructure in which large-scale DNA diagnostic services are available. - Conclusions: Successful implementation of preconceptional carrier screening for cystic fibrosis and haemoglobinopathies will depend on changes at both regime and landscape level, including the establishment of a new preconceptional health care setting and a clearly visible public health authority which can coordinate, monitor and evaluate such an initiative in public health care.

Autor(es): Achterbergh, Roos -  Lakeman, Phillis -  Stemerding, Dirk -  Moors, Ellen H.M. -  Cornel, Martina C. - 

Id.: 54805128

Versión: 1.0

Estado: Final

Tipo:  application/pdf - 

Tipo de recurso: Article / Letter to editor  - 

Tipo de Interactividad: Expositivo

Nivel de Interactividad: muy bajo

Audiencia: Estudiante  -  Profesor  -  Autor  - 

Estructura: Atomic

Coste: no

Copyright: sí

: © 2007 Elsevier

Formatos:  application/pdf - 

Requerimientos técnicos:  Browser: Any - 

Relación: [References] http://doc.utwente.nl/78619/1/Achterbergh07implementation.pdf

Fecha de contribución: 07-dic-2011

Contacto:

Localización:


Otros recursos del mismo autor(es)

  1. Trends in genetic patent applications: the commercialization of academic intellectual property We studied trends in genetic patent applications in order to identify the trends in the commercializ...
  2. Developing a framework for implementation of genetic services: learning from examples of testing for monogenic forms of common diseases Genetics in health care is shifting, and responsibilities of genetic and nongenetic specialists are ...
  3. Governing synthetic biology for global health through responsible research and innovation Synthetic biology (SynBio) is a global endeavour with research and development programs in many coun...
  4. Special issue editorial: synthetic biology, global health, and its global governance
  5. Newborn screening for pompe disease? a qualitative study exploring professional views

Otros recursos de la misma colección

  1. A fiber-optic strain measurement and quench localization system for use in superconducting accelerator dipole magnets A novel fiber-optic measurement system for superconducting accelerator magnets is described. The pri...
  2. Steering of flexible needles combining kinesthetic and vibratory force feedback Needle insertion in soft-tissue is a minimally invasive surgical procedure which demands high accura...
  3. A system for denial-of-service attack detection based on multivariate correlation analysis Interconnected systems, such as Web servers, database servers, cloud computing servers and so on, ar...
  4. Quantitative penetration testing with item response theory Existing penetration testing approaches assess the vulnerability of a system by determining whether ...
  5. Quantitative penetration testing with item response theory Existing penetration testing approaches assess the vulnerability of a system by determining whether ...

Valoración de los usuarios

No hay ninguna valoración para este recurso.Sea el primero en valorar este recurso.
 

Busque un recurso